mayalaen: (Default)
it’s so weird seeing people post about voices and visual “hallucinations” because i’ll get like halfway through a post before i realize they’re characterizing their inner monologue or they’re talking figuratively about the way something appears or moves and you’d think i’d be used to it by now but no

i was embarrassingly old before i realized that when people were talking about their muse they didn’t mean an actual voice they hear giving them writing tips
mayalaen: (Default)

I picked up my cell phone with my right hand and it felt hot so I was like aww crap I wonder if my new charger cord is wonky and it’s causing my phone to get too hot while charging.

So I lean over the desk, transferring my phone to my left hand so I can mess with the cord, and as I’m doing that I realize the phone is room temperature in my left hand.

Phone not overheating.
Just stupid brain.

mayalaen: (Default)

I knew the steroids would make me irritable, but I didn’t anticipate them making my hallucinations THIS much worse. They’re bad enough right now I’m not comfortable driving. Getting my period at the same time probably didn’t help.

I’m feeling wet/cold spots all over the carpet, hot and cold areas in the house, 3 of the rooms in the house smell like gas (don’t worry, I asked my mom to check and there’s no actual gas smell), there’s a clicking noise that won’t go away, I’ve got a guacamole-gone-bad taste in my mouth, a lot of the things I touch feel sticky, and even though I *know* there weren’t earthquakes here today (or ever where I live), the ground felt like it shifted a few times today and yesterday.

My mom had a seizure tonight just a few minutes after she started working on something for her boss, so I had to finish it. It’s almost 4am and I just finished. Got mom to bed about an hour ago. She’s pretty fuzzy, but the seizure was in the back of her head, which means it’s not going to hit her as hard. The ones she gets in her forehead area are the worst.

The steroids are also getting me stuck in this weird in-between area with sleep. I’m buzzed and don’t feel like sleeping at all, but if I can catch it just right and actually fall asleep, I conk out for a LONG time. I slept 9 hours yesterday.

My dad gets back from Nevada tomorrow, and my mom’s friend is bringing him home from the airport, then staying with us for a few days. Kinda sucks that there’s going to be more people in the house, but maybe she’ll drive me to and from the shop.

I’m tired-buzzed, so I should probably at least TRY to get some sleep :P

mayalaen: (Default)
It's official: I’m too crazy for jury duty! WOOHOO!!

I mean yeah it sucks that my psych doc had to get huffy with them and be like “seriously she’s MESSED UP” before they stopped threatening me with a $500 fine for not showing up. And it’s kinda upsetting in a weird way that I’m actually crazy enough that I *shouldn’t* be a juror.

But now it’s official. They’re not only dropping it currently, but they’re putting me in the system as “permanently dismissed.”

Since they started pushing the $500 fine thing, I went down to my psych doc’s office and was like, “Okay, so apparently they want me to go in there. Do I go and just be myself?”

She got the funniest look on her face. A mix of barely-concealed horror (because she KNOWS my views on stuff and what I’d say to them), amusement (because she knows I’d totally do it and she likes that part of me), and concern for my mental health (because yeah it would mess me up bad).

She said no, not to go down there.

Damn, and I was all set to tell them that I’ve never been the victim of a crime or assault, so I’m the perfect candidate for sitting on any jury. Oh except that part where I hallucinate or read between the lines when people are speaking and fly off with conspiracy theories.

Or that funny little thing I do when I’m going into a psychotic episode (which can be brought on by stress) where I stop talking (catatonic schizophrenia yay!) or just throw my body into shock.

Or my views on what should be done with criminals.

Or my communication skills, which would totally wow them when it came time for me to deliberate with other jurors.

All in all, I’d be an awesome juror. No one would appreciate me, but at least now they’ll never bug me about it again. So YAY.
mayalaen: (Default)

With the added stress of fixing the website, helping my mom with catching up on her work, and dealing with some other family stuff, my hallucinations are flaring a bit more than usual.

The one I’ve been getting the last three days is... not fun. Sometimes they’re fun, but this isn’t.

I helped clean out my mom’s “friend’s” apartment after she died in her chair. I put friend in quotation marks because she was a horrible person who just took advantage of my mom and treated EVERYONE like shit and did the whole Munchhausen thing, only the last time she did the Munchhausen thing she took it too far and nobody was around anymore to save her.

And because she was so awful and mean to everyone, nobody noticed she was dead until a week later when the neighbors complained about the television being on all day and all night.

I’m still not really sure why my mom thought it was our job to clean out the apartment, but the smell was horrible, and that smell is what I keep hallucinating the last couple days along with my van shivering as I drive it, my cell phone hopping a couple inches up and down every once in a while, and one little part of my clothing feeling cold/wet at random times.

It’s not bothering me beyond asking my dad to test drive the van and see if the shiver is a real thing that needs fixing (it wasn’t). I just know that if I’m not careful I’ll throw myself into a psychotic episode by stressing myself out.

But tonight is gummy night anyway, so I just gotta finish out the day and rest tonight :)

mayalaen: (Default)
I have drug-resistant Paranoid Schizophrenia, and I hallucinate with all five (and more) senses. Drug/Treatment-Resistant means that medications like antipsychotics don't stop my hallucinations. In fact, in my case they actually make them worse.

I'm self-aware and high-functioning, but I have psychotic episodes that will last a long time if not treated, the longest being 5 years. When I have psychotic episodes, I tend to switch to Catatonic Schizophrenia, which isn't quite what it sounds like, and if you'd like more information, please click on the link.

I've been on more medications than I can count over the years, but the last time I compiled a list, it was over 40. At times I was on as many as 9 different medications at one time, none of which helped much, and most of which made me worse in some way and caused intolerable side effects such as brain and nerve damage, hypersomnolence, and many others.

So I went in search of alternative treatments, the first of which being something I've been on for 8 years now, which is Wellbutrin/bupropion. It's an SNRI (not an SSRI), and after doing a lot of research and for various reasons (which I'll probably go into more detail about at a later date), I decided it would work, and it did once I found a psych doc willing to prescribe it to me. Keep in mind this is a medication doctors WILL NOT normally prescribe schizophrenics! Yet it has worked wonders on me.

However, it didn't stop me from having breakthrough psychotic episodes -- about 1-2 per year. So about a year ago I started my search again.

For a few months now, I've been using THC gummies/edibles as a treatment for my schizophrenia. THC is a natural antipsychotic, antianxiolytic, and has many good properties. Read This Article to see some studies about it.

I've tried everything from 2.5mg all the way up to 120mg of THC per dose. For reference, the average joint is anywhere from 10-50mg (they may say there's more THC in there, but only 10-50mg is actually ingested).

In that time I've learned some things about how THC effects schizophrenia, anxiety, paranoia, psychosis, hallucinations, and daily life.

First of all and most important to me, there's no obvious nerve damage and so far there hasn't been evidence of brain damage even in studies where ridiculously high amounts of THC was used, including 1000-1200mg of THC per dose given daily.

Second, it's the only thing that has stopped my hallucinations. Within 1.5 hours, even at my worst, THC stops all hallucinations. It brings my paranoia level down to almost none. My cognitive function is greatly improved, as is my concentration and memory. My auditory processing improves, and my social skills improve slightly as well.

My sleep patterns improve, and instead of sleeping anywhere from 1-5 hours a night or not sleeping at all for days at a time, my sleep pattern regulates somewhat and I get a regular 5-6 hours at roughly the same time every night.

My clumsiness improves, my facial expressions improve (schizophrenics tend to lack facial expressions and gestures), and my ability to tolerate noises and humans improves greatly, especially children.

The only problem I'm seeing so far is that I can't stay high 24/7. I own a business, and it takes a lot of my time and mental energy, so I've been taking about 30mg of THC on Saturday night (the first night of my weekend) only. I'm not able to drive or work on this dosage, but it only lasts for about 18 hours, so by the time I need to get errands and household chores done on Monday, I'm completely sober again.

This brings up another issue. Something I didn't expect, but really should have. I've had schizophrenia since I was 2 years old, and I became accustomed to hallucinations very early on. I'm self-aware, and most of the time I can tell the difference between a hallucination and reality. The times I can't, friends and family are awesome enough to let me ask and they'll calmly inform me whether what I'm seeing/hearing/tasting/smelling/feeling is real or not.

But in the 18 or so hours I don't have hallucinations due to the THC in my body, I get used to a lack of hallucinations way too quickly. That means that when it wears off, I have a hard time acclimating to the hallucinations coming back. I'm more jumpy, I "forget" to ignore the noises/voices, and it takes me a day or two to get used to it again. That's not necessarily a bad thing, but it is a concern.

In the six months I've been using THC on and off, I haven't had a psychotic episode, and it has twice stopped one from coming on. I had all the symptoms of one coming on (noticed by me, my family, my friends) and yet after one dose, it backed off to normal levels. Previously I had to use 8-week courses of antipsychotics to "reset" my brain and stop the psychotic episode.

The medical community doesn't want to look at THC as an alternative treatment. They won't even consider the fact that antipsychotics aren't the best treatment for schizophrenia. They use medications that cause brain and nerve damage just because they don't know what else to do with us, and they feel the damage is worth the risk.

That means research into alternative treatments suffers, and that means medications aren't being produced that take advantage of these findings. Instead schizophrenics are being heavily medicated until they're drooling. On the other hand, many schizophrenics refuse to take any medication at all because the only things offered to them are more horrible to them than the disease itself, so they're left suffering through whatever symptoms they have to deal with on a daily basis.

Hallucinations don't upset me. I've lived with them all my life. My goal isn't to rid myself of them, and I couldn't care less if someone feels it's not "acceptable" and I should be medicated so they don't have to be exposed to it. My concern is cutting down on psychotic episodes and making my life more stable and easier to manage.

What I've found so far is working, and I hope one day soon the medical community takes the stick out of their ass and does something about making THC or the properties of it into a medical treatment somehow, especially one that doesn't get people high so they can work and play the way they want to.

Profile

mayalaen: (Default)
mayalaen

January 2025

S M T W T F S
    1234
567891011
12131415161718
19202122232425
262728293031 

Most Popular Tags

Syndicate

RSS Atom